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The Hope Jones Story
Hope Jones

Hope’s story started at 20 weeks pregnancy, when we had the joyous news that we would be having a second daughter.


Together with Sarah, our first daughter, we celebrated the prospect of a new sibling being added to our family in April 2008.


The name Hope was chosen without any idea of the challenges that lay ahead. We named her Hope as we believed that her life would bring hope to the lives of others.


The 21st of April 2008 arrived and our lives were plunged into turmoil and heartache. Hope was born with a Congenital Myopathy which affected all her voluntary muscles, to the extent that she was unable to swallow at birth. Added to this was a bi-lateral hearing deficit and other physical challenges. Her prognosis was bleak and uncertain.


So began our painful and traumatic journey with Hope along life’s highway.


With our faith as an anchor, the assistance of several excellent Medical Specialists, and the ongoing intervention of various supportive therapies, Hope has made incredible progress, achieving several age related developmental milestones.


Hope still has challenges in the areas of speech, and physical and cognitive development.


Hope is currently attending Merryvale School for Specialised Education.


We have established the Hope Jones Foundation to bring hope to those travelling a similar road. By providing medical and advisory support to both children and their parent, we can bring hope into lives at a time when all seems lost.


There is always hope.


Gary, Deirdré, Sarah and Hope Jones